Today’s guest, Jody, worked as an actor on Broadway for a year, but nothing had ever prepared her for the role she was required to play after the birth of her firstborn daughter, Lueza. After a completely unremarkable pregnancy, Jody suffered severe complications during childbirth, resulting in significant brain injuries for Baby Lueza.
After suffering from horrible seizures as a young infant, they were able to stabilize little Lueza. Once they did so, she began to show a smile that would light up a room. Still, Lueza had significant delays. She could not sit, eat, or talk independently. At one point in time, Jody remembers looking at her husband and saying, “Will Lueza ever be able to sit up on her own?” Her husband’s answer stuck with her: “She may be lying down, but she may be very happy.”
Over the years, Lueza proved her Dad right. She continued to be ‘lying down,’ but she was always very happy. She loved music, movies, and roller coasters. She would laugh and squeal and could let her family know what she did and didn’t like with the slightest head movements. And her smile continued to light up the room.
Lueza had a profound effect on many people around her as she interacted with doctors and nurses in the medical community and her teachers at school. Over time, Lueza slowly developed more complications and died suddenly at home one night after getting what her family thought was only a little cold.
Then, Jody’s life changed once again. She was no longer the mother of a medically complex child. She was now a bereaved mother. There were no more hospital visits. The medical equipment was no longer needed in the family home. Jody began doing arts and crafts as a form of healing. She attended spiritual support groups for bereaved parents. Most importantly, Jody began to write.
Jody wrote a memoir about her life with Lueza that was years in the making. The title of the memoir was so fitting – ‘She May Be Lying Down, but She May Be Very Happy.’ This memoir was a story of her life with Lueza and a heartfelt thank you to all the people who had helped her over the years. A beautiful tribute for a beautiful girl.
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